Showing posts with label type1diabetes. Show all posts
Showing posts with label type1diabetes. Show all posts

Thursday, November 1, 2018

Diabetes Awareness Month 2018

Photography by Talya Shai


This is the month where many of us in the Type 1 community inundate our Facebook friends, our Instagram and Twitter followers, and our blog readers with information about Type 1 Diabetes.

And some people might get annoyed with us. But you know what? That’s too bad, because the world is so full of false information about Type 1 that every single person who is telling the world the truth makes a difference. Or at least that’s what I believe.

Diabetes isn’t a “sexy” disease, as people would say. Nope. It’s stigmatized with much of the world thinking we gave it to ourselves by eating too much sugar, that it’s a “fat person” disease, and many more misconceptions that are incredibly damaging to Type 1s.

Explaining to the world that this disease can hit anyone, at every time, is important. People need to know that it can happen to your parents, your friends, your siblings, or yourself. And though it’s commonly diagnosed in children, it’s diagnosed in adults too! It happens to athletes, lawyers, tiny children, and your everyday person. It doesn’t matter your size, your shape, your weight, your age... it can come and hit anyone like a freight train. Because it’s an autoimmune disease and unfortunately there’s nothing to do to stop it and there’s no cure. This is why we fight so hard and make so much noise.

So, to my fellow T1Ds, here’s to making a ton of noise this month! May the awareness begin!



Saturday, October 7, 2017

10 Kids Thriving with Type 1

After meeting some of the coolest kids ever during the conference in the summer, and after being introduced to some of them by social media, I knew I had to write this article. They are brave. They aren't fearless, but they face their fears. They show Diabetes who's boss, even though they're pint-sized.

Mason


Mason, who just turned 7, was diagnosed with Type 1 when he was 3 years old. His mom and dad help him raise awareness on Instagram and Facebook by sharing their Type 1 journey. He and his mom actually made an awareness video on Facebook that pulled in 50,000 views! He even takes time to educate his class at school by showing comic book slides made by his momma.

It was the 4th of July when Mason ate an entire bowl of tortilla chips and mom’s first instinct was that he has diabetes. She took her to the doctor, who ignored her suspicions, despite her insisting on testing. By the next day, he couldn’t even hold his head up, so he was rushed to the ER where he was diagnosed within 30 seconds.

His favourite things to do naturally include fighting with his little sister, going to parties, playing video games, drawing and swimming. When his blood sugar goes low, his favorite snack is cotton candy because it melts so quickly in his mouth! Never thought of this, so smart!

I asked Mason if he could tell the whole world one thing about Diabetes, what would it be?  He says, "You do not get diabetes from eating sugar. Also I can do anything other kids can do, and maybe even better!"

You can follow him on Instagram @1mightytype1family.

Jalaeny


9 year old Jalaeny was diagnosed 4 years ago, at age 5 with Type 1 Diabetes. 

During her kindergarten year she began to wet the bed. Her mom started limiting her liquids around bedtime, but she would still beg for more. During a short 15-minute grocery trip, she had to use the bathroom twice! Her mom brought her into the doctor and right away they tested her blood sugar... it was 560 mg/dL/31.1 mmol/L! 

Jalaeny loves to have fun making slime, and making music videos with her friends. She's plenty busy with fundraising and fun with Type 1 Diabetes friends. She does the JDRF walk, goes to Diabetes camp in the summer, and attends the Children's with Diabetes Friends For Life conference in the summer. When her blood sugar goes low, she likes to snack on Starburst! She's proud that she can do anything anyone else can do, with the help of her Dexcom and Omnipod!

I asked Jalaeny if she could tell the whole world one thing about Diabetes, what would it be?  She says, "If I'm at a birthday party I can have a piece of cake!"

You can follow her on Instagram @mrs._fred.
 
Elise



10 year old Elise is a pro at T1D.. she was diagnosed 2 days after her first birthday at her 12 month check up! Her family does the JDRF walks in multiple cities (Dallas, Lisbon, Toronto and NYC), and she goes to Lions camp. She's also part of the Bionic Pancreas clinical trial. When her blood sugar goes low, her favorite snack are Hi-Chews, and some of her favorite activities include reading, writing, playing soccer, and playing with her American Girl doll. 

She is super proud to be the youngest kid to try the Bionic Pancreas in 2014. Not only that, but this year she published her own book at the age of 9! 

I asked Elise if she could tell the whole world one thing about Diabetes, what would it be?  She says, "That you can do anything, even if you have it..." 

You can follow her at www.teamelise.com. 

Logan 


10 and a half year old Logan has quite the impressive resume. After his MMR Vaccine he was sick with a fever for a few days. Shortly after, he started drinking a lot of water, and he was barely eating. He was also sleeping in in the mornings, so that was their sign to call the pediatrician. Luckily, they have a great medical team who recognized the symptoms right away. 

Diagnosed at only 17 months, he has thrived with Type 1 in amazing ways. Again, at 10 years old, these are all the things he’s fundraised for: Friends for Life, Riding on Insulin, JDRF Promise Ball, JDRF 5K Endurance Team, Beyond Type Run 5K. This past year, it was also because of Logan's initiative that everyone at the Friends for Life conference got Mickey Bars! He also says he’s a Beyond Type 1 Bike Beyond groupie. I say he's a go-getter.

This guy’s got a lot of hobbies. He collects coins, baseball cards, stuffed animals, stamps, Disney pins, hot wheels, and many more. He also likes Monster Trucks, Lego, art, traveling, biking, and lots of stickers! When he goes low, his favourite snacks are cookies, but most of the time mom makes him have juice.

Logan is proud that we have a Type 1 community and he's not just a “lone dog”. He also says he’s proud that he’s able to fundraise and help educate his family and friends.

I asked Logan if he could tell the whole world one thing about Diabetes, what would it be? "I want the world to know what it is so I don’t have to explain it to people all the time and then everyone can help find a cure."

You can follow him on Instagram @elbowbumpkidsmom.

Brenley 


3 year old Brenley is quite the little force. She was diagnosed with Type 1 at just 2 1/12 years old. Brenley’s parents knew something was wrong. Red flags started popping up. She was potty trained at 21 months but she kept having accidents, which wasn't like her at all. Then quickly came the extreme thirst and the dark circles under her eyes. 

Brenley is 3, and will be turning 4 November 7th. On April 14th, 2016, her mom took her to her pediatrician and expressed her certainty that she had Type 1. Labs were taken, and then came the call… she had a glucose level of almost 600 mg/dL/33.3 mmol/L, and they rushed her straight to the children’s hospital.

Little did they know the 7 months later they’d be hit with another curveball. Brenley was diagnosed with cancer. A Stage 3 Rhabdoid Tumor of her left kidney. She just completed her treatment, and in the near future they’re looking forward to taking part in a bunch of Diabetes and Cancer events.

This sassy girl is “absolutely obsessed” with Bruno Mars. It is how they got through mostly everything in the last year. They listen to his music almost all day and she loves having dance parties.
When Brenley's mom asks her what she's most proud of, she says "I'm stronger than anyone!"

She’s discovered her favourite low-carb snack; organic cucumbers and baby carrots with Greek yogurt ranch dip. Sounds good to me!
 
I asked Brenley if she could tell the whole world one thing about Diabetes, what would it be?  She says, "I would want them to know how it feels to have a low blood sugar." 

You can follow her on Instagram @type1.brenley. 
 

Tre


You don’t want to mess with 8 year old Tre, he’s a karate pro! Only 2 weeks after turning 5 on April 7th, 2014, Tre was diagnosed with Type 1 Diabetes. He had a few symptoms like fatigue, thirst, and frequent urination, but they were cleared (and obviously misdiagnosed) by the doctor, so they were given the go ahead to go to Florida for vacation. The second day there, mom Melinda knew something wasn’t right and took him to the ER. Turns out he had a blood sugar of 879 mg/dL/48.8 mmol/L, his a1c was 13.9%, and he was in severe DKA! Mom knows best.

Tre is captaining for Beyond Type 1’s Power Up 2017 campaign, and this year they just walked in their 4th JDRF walk, which is always a fun day for them. Tre’s family participates in many online campaigns to support T1D awareness, and loves connecting with other families. Next up on their to do list… Diabetes camp!

Apart from loving Karate, some of Tre’s favourite things to do are playing Minecraft and building Lego masterpieces. His favourite low snack is snack apples and peanut butter, and he says that what makes him proud is “Breaking boards in karate makes me proud because it's kind of hard, but I did it!”


I asked Tre if he could tell the whole world one thing about Diabetes, what would it be?  He says, "I would want the world to know that it's not the best and it's hard sometimes, but type 1 diabetes makes you strong and brave. In time, it gets a little easier to deal with." 

You can follow him on Instagram @melinda_t1dmom.


Eva and Leah 



Eva and Leah are Type 1 twins! Having just turned 2 in September, the girls, and their parents sure are fighters! Leah was diagnosed first. She was 10 months old when she went into DKA and came close to losing her life. Only 9 months later, they tested Eva’s blood sugar and were able to catch it before she got really sick.

As a family, they do the JDRF One Walk, and in the summer, they attend the Children With Diabetes Friends For Life Conference.

In their spare time, they love to jump on things. We might have little chefs on our hands because they love to cook in their play kitchen. They also love to play dress up and color.

When their blood sugar goes low, their favorite snack is cookies. I asked what makes them proud and dad Geordan told me at the moment it was putting on their own socks and doing things for themselves.

I asked Eva and Leah's parents,  "If they could tell the whole world one thing about Diabetes, what would it be?  They said, "Diabetes is an epidemic, it could happen to anybody; especially Type 1.  We need more research on this disease."

You can follow them on Instagram eva_rose_leah_skye.
 

Henry


Henry is a feisty 10 year old who was diagnosed in 2013. He was diagnosed on February 7th, the same day as one of his favourite people, celebrity chef Sam Talbot was diagnosed! He was going to the bathroom a lot. Then one night he ate pizza and he was up peeing and drinking all night! In the morning, he told mom Sara that he didn’t want to go to school and right away she knew there was something wrong. So she brought him to the hospital and that day he was diagnosed with Type 1. Henry thought that he was going to lose his legs because of it, since he only knew about someone with Type 2 who didn’t take care of themselves.

Henry fundraises for Beyond Type 1, and he says it’s because of this; “They give 100% of the donations back to do things like help kids who are new to Diabetes and just want to get out of the prison the diabetes can make you feel like you are in.” This is part of the reason he loves helping his mama out with her Beyond Type 1 work. He says that Type 1 Diabetes camp is best for kids who don’t know anyone with Type 1, but that he knows a lot of kids with T1D, so he didn’t like it very much.

Some of his favourite things to do are to swim, draw, read, write, and to taekwondo. He got asked what makes him feel proud and his response was “I don’t know what makes me feel proud. Maybe I always feel proud so I don’t know when it’s happening.” Smart kid!


I asked Henry  "If you could tell the whole world one thing about Diabetes, what would it be?He said, "I want the whole world to know that no one needs to be afraid, its just something that happens and there are people like me that can help you feel less scared."
 

You can follow him on Instagram @sarabeejensen or @herculesandhenry.



  Isabella


7 year old Isabella (or Isa for short) was diagnosed only 2 weeks before her second birthday, on August 28th, 2012. Mom and dad started noticing some of the classic signs of T1D (thirst, wetting the bed, etc.), then one day her teacher sent a note home asking them to send in a bottle for her because she was always asking for something to drink. It was an immediate red flag, so they took her to the pediatrician, who recognized the symptoms right away and did a urine test.

Isa loves getting involved in the community. She’s a Beyond Type 1 Ambassador and got to walk the stage with Nick Jonas when he received his HERO Award at the Radio Disney Music Awards. She loves going to the CWD Friends for Life conference, and this summer was her 5th year! This fall she’ll participate in her 6th JDRF walk, with a team of over 100 people walking with her! She also had the opportunity to represent North Ohio as a 2015 JDRF Children’s Congress and helped them show Washington was living with Diabetes is like. She's kind of a big deal.

Isa is a triplet, and loves spending time with her brother, Max, and her sister, Mia. She loves playing school even when she’s not in school. You can always find her reading or doing math workbooks. She’s also a brown belt (soon to be black) in Taekwondo!

She loves decorating her pods and showing off by wearing them on her arm and leg for everyone to see. Dad Greg says Isa is a shy kid and doesn’t like to be the center of attention. With a growing social media following, she is proud of herself when her mom and dad tell her that she inspired other people. Now that she’s starting to understand the whole social media thing, she’ll say things like, “Post that pic on Instagram!”


I asked Isa, if she could tell the whole world one thing about Diabetes, what would it be?  She says, “Diabetes can’t stop you from doing anything. You don’t have to stop doing what you like to do a lot.”   

 You can follow her on Instagram @inspiredbyisabella or on their Facbook page, Inspired by Isabella.


Addison

 



7 year old Addison has been at this for a while; she was 2 and a half when she was diagnosed on February 28th, 2013. They were visiting their family out of town at the time, and they called their pediatrician from their hometown, because they starting suspecting diabetes. They were told the signs to watch out for, and the next week they called him back because all of the symptoms were happening. Mom decided to bring her in for them to test her blood sugar. Well, mom knows best, and she was diagnosed that day.

In the past 4 and a half years, Addison and her family have raised over $25,000 for diabetes! Dad Ryan participated in 2 Tour de Cure rides, and they’ve participated in 5 JDRF walks. She’s been attending the Friends for Life CWD conference for 3 years and they plan to attend as long as they can!

Addison loves Pom Poms, swimming, and is a pretty great little gymnast. When she’s not doing sports, she loves playing outside with her friends and building forts with her little brother. When it’s time for a low/no-carb snack, she likes sausage and cheese.

She gets super proud of herself when her blood sugar shows 100 mg/dL/5.5mmol/L on her PDM. She loves school, so she loves seeing smiley faces and stickers on her homework. One of the things she’s most proud of and loves to show off are her pods, because she paints them all herself. Last year her Kindergarten class all painted a pod and gave them to her on her diaversary! I think that's amazing. She gets really excited when her friends wear her pods and show them off to the rest of their friends. 


I asked Addison, if she could tell the whole world one thing about Diabetes, what would it be?  She says, “Diabetes is not easy but it can be fun sometimes. I don’t like having diabetes because sometimes I have to eat when I am not hungry but sometimes I need to eat and I like getting candy sometimes when I have a low blood sugar.”   

You can follow her on her Facebook page Addison's Angels.

10 wasn't enough, so surprise, we have one more!


Maeve




7 year old brave Maeve is also a pro at this, being diagnosed at 18 months old on May 20th, 2012. She was diagnosed in a complete crisis! One Sunday morning she didn’t wake up from her crib. She was in DKA, after 7 visits to the paediatrician and urgent care who kept misdiagnosing her with things like the flu, step throat, etc.

Her family does the JDRF Walk, and also attend the CWD Friends for Life conference every summer for the last 5 years. The family together holds multiple of their own fundraisers for JDRF, the Diabetes Research Institute, and Children with Diabetes.

To treat her lows, she usually used glucose tabs, or ‘glue-keys’, as she calls them. She loves drawing, reading, jumping on the trampoline, and playing flag football. She’s one of the only 2 girls on the team! What makes her proud is doing well in school.




I asked Maeve, if she could tell the whole world one thing about Diabetes, what would it be?  She says, “Don't worry, I am ok. I'm not low all the time!”

 You can follow her on her Facebook Page Brave Maeve.

 ~
These kiddos are my heroes.  

Saturday, August 12, 2017

Valued Voices #5 - Mike Natter - Brand New Doctor living with Type 1 Diabetes





Hey Mike! Thanks for being here to answer some questions. I’ll start off my letting you introduce yourself.

Mike: Oh boy, that’s a tall order. I’ll give you the short of it. I’m Michael Natter. I’m 31. I’m a New Yorker, and I’m a Type 1 Diabetic of almost 23 years, and I’m a newly-minted doctor. I’m in my Internal Medicine Residency at NYU, and I’m also an artist.




When did you decide you wanted to be go to med school? Was that your childhood dream, or anything close to this?

Mike: Okay so, we’re digging in, Michelle, we’re digging in. So yes, and no. So I grew up in New York, and things that came more naturally to me were more of the arts. So I was much more inclined to paint and draw, to write. I was good in history and that type of stuff, the humanities. I was god awful at math and science, like, truly horrific. There were no doctors in my family, no real science in my family, and I was much more someone who could pick up a crayon, and I would shy away from the math textbooks. And so my whole life, I was kind of shitty at math and science. So I kind of geared more toward the arts.

Then when I was diagnosed with Type 1, I had just turned 9 years old, and as I’m sure you can relate, and most people who have Diabetes can relate… when you’re diagnosed with Diabetes, something that once was this automatic, unconscious process that your body was doing for you, has now become your full time responsibility. And in that shift of taking on this newfound responsibility, I gained this really deep appreciation for what medicine was, and what biochemistry was, and what things were happening in our bodies. Like a beautiful symphony of chemicals, and enzymes, and molecules, and it’s like “Holy shit. All of this is going on inside of me and I had no idea and now I have to take care of it”, and now as a grown man who’s a physician, who STILL struggles to maintain my blood glucose, it’s a really tall task to deal with.

So I got this window into physiology, and it made me fall in love with what was going on. I was really fascinated by it. So at that age I was always kind of interested in medicine, but because of my academic weaknesses, and my other strengths, I never really considered it as an actual possibility. And recounting of when I was growing up, you know growing up in New York you’d take the subway places, and I would be in the subway in high school or whatever, and I would see people in their short white coats, I’d see people in their scrubs, and it would be like seeing an astronaut. And you’d have this sense of just awe and admiration of like, you want to aspire to be like them. You want to be that astronaut. But you also know that you will never be that astronaut. So for me it didn’t even seem in the realm of possibilities.

So I went ahead and I ended up going to Skidmore College in Upstate New York, because they had a very strong art program. And I went there mainly for that. So I went to study art essentially, and I would draw these large naked women in charcoal and bring them home on my vacations and my parents, who were funding my college tuition, were like “Honey, come on, like forty thousand dollars for you to draw a pair of tits.” And I had to kind of reassess. So I reassessed, and I started studying neuropsychology, because I became very interested in the brain. I found a mentor within the neuroscience department who saw my interest, who saw my potential, and kind of took me under his wing. And it wasn’t until that part in my academic career that I had gained some academic confidence in myself. And I had this epiphany at the end of college that I wanted to go to med school.



How did you get through med school? Was it harder getting through med school and managing your BGs at the same time?

Mike: Yes, so, I was was never one of those diabetics whose A1C was always like 6.0 all the time, and you know, I always struggled, my blood sugars would fluctuate quite a bit in every environment that I was in. So med school being a very stressful, difficult environment, you kind of lose your autonomy of your time. You might be in the hospital for 8 hours, or you might be in the hospital for 24 hours, and sometimes you don't know. But how I got through med school academically was through my art. I drew everything, and by drawing everything, not only did I kind of make the material my own, but it made it a lot more enjoyable.



Now I ask every person with Diabetes that I interview this question; Favourite low snack?

Mike: I have this issue of when I’m low, I get these pregnant lady cravings, and I just shovel things into my mouth. I tend to have a craving for chocolate, so anything chocolaty is kind of my go-to, even though chocolate’s probably the worst thing to eat when you're low because it has all that fat.

 


Are you a pump user, or a Dexcom user?

Mike: Yup, I’m using the new Medtronic pump, and I’ve got my Dex.




Did you ever consider endocrinology as a specialty? Or do you deal with enough of that on a day to day basis?

Mike: That’s my plan! I want to be an endocrinologist. That’s what I’m planning to do.




Do you think having a chronic illness yourself will make a difference in the way you treat your patients compared to doctors who have never been through it?

Mike: I absolutely do. At least in America the training process is so crazy, and the volume of patients that you see and how sick they are, we’re overworked, and it’s very easy to become desensitized to the patient suffering. And it’s also very easy to kind of write patients off, especially their complaints about what’s going on. So being able to relate to them is huge.



Your Instagram is full of incredible anatomy art. Did you draw as you learned in school? Is that how you studied?

Mike: Yep, you got it. I mean, it’s two-fold. So I like to draw, just to draw, and the long detailed drawings that took longer were not necessarily done in med school and to study, they’re more for fun, and for aesthetic purposes, and for commissions, and stuff to hang in my house. But the large majority of what I’ve posted over the last 4 years is for medical school, and to help me learn. I never considered myself intelligent, so you know, when I was learning very complex things, the only way that I could understand them is if I broke them down, and explained them to myself in very, very simple terms.



In medical school, do they still teach something along the lines of “If you hear hoofbeats, look for horses, not zebras”?

Mike: Well in your case you’re quite a zebra. They do teach that. That common things are common, and it’s funny you say that because I have a penchant for zebras. I find that the sexy parts of medicine to me are the Sherlock-Holmes-y, detective things. And so I seeing a patient before they open their mouth, by looking at them and figuring out what’s going on with them. And there’s a handful of very rare diseases that if you could pick up, you’re like a superstar, because no one thinks of them. I’ve gotten into trouble though because medical education is so structured and so hierarchical that every way you talk about things is kind of algorithmic. So I would go see a patient, and the attending physician would say, “What’s your differential diagnosis?”, meaning what’s the list of most possible to least possible things this person has. I would always throw too high up on my list, you know, “Stiff Person Syndrome” “Pheochromocytoma” “Multiple Endocrine Neoplasia”, and they’re like, “There is no way this person has any of those.” So yes, they still teach that. And when you're dealing with a volume of patients, more often than not, 95% of the time, it will be the common thing.



I had a very finding out what was making me sick. At first my GP would blame my depression or anxiety. Then blamed deconditioning, and so on and so on, when my basic tests were normal. Because how can a vibrant young girl be sick? Turns out, I have quite a list of doctors to go back to and let them know what they missed. And I know way too
many people with the same story. With that being said, I have two questions.

Do you think patients are judged on their age, appearance, and possible history of mental illness?

Mike: Sadly, I think they are. And I think that the problem is medical education. Because we are taught based on multiple choice exams, and multiple choice exams kind of push doctors to learn by pattern recognition. And pattern recognition also relies on demographics. Demographics being.. before I even finish rest of the question on the exam if it says “Middle-aged African American woman with joint pains”, I’m already thinking “Sarcoid and Lupus.” So these are the things that they just try and shove into your brain. Or like “Young white caucasian female with headaches and vision issues”, you’re thinking “Multiple Sclerosis.” So these are the ways that they teach us because there’s so much volume of information, it’s almost impossible not to use those patterns.  And I think for 70% of the time, it’s good. It helps you. But then those people who fall through the cracks, those 30% of people, are getting judged by those types of things.



What do you think is the best way to make complex patients feel heard?

Mike: So I think patients are patients, and patients are people, and like any person, they literally wanna be heard. There’s data that shows physicians will interrupt their patients in seconds when they walk into the room. I make an effort to sit down. And I think that’s also something a lot of doctors don't do and there’s data that shows that if you spend the same amount of time with a patient, and in one instance you’re sitting and in one instance you’re standing, the patient perceives you as being in the room longer. So I make a real effort to sit in the room, and I make a real effort to ask how they're doing, and ask open ended questions and let them talk and tell their story.

 Thank you Mike for the great interview! You can follow Mike and his cool drawings on Instagram @mike.natter 




Saturday, July 15, 2017

Valued Voices #4 - Chris Ruden

Last week at the Friends for Life conference, I had the pleasure of seeing Chris Ruden speak. This week, I had the pleasure of interviewing him for you guys. He is one of the most incredible people I've had the chance to meet, and I hope you find his words as inspiring as I do.

So first, I just wanted to start of by saying hi. Second, I wanted to tell you that it was amazing seeing you speak at the conference, and also wanted to thank you for doing this little interview with you.

I’ll start by letting you introduce yourself, and tell us a bit about what you do.


Chris: My name is Chris Ruden, and I am probably the only 7 fingered, diabetic, disabled, powerlifter, motivational speaker, and online fitness and nutrition consultant that you know. And if not, that other person is lying, because that is definitely only me.

So I train people from all around the world. I’m also a powerlifter, getting into bodybuilding, modelling and all kinds of stuff, and I speak professionally.




Do you find that your childhood was different from other kids because of being “different”?

Chris: Absolutely. 100%. I had to grow up quicker than most, you know, mentally. I had to learn how to be okay with what people say, and how to choose my reactions wisely. So, a lot of it was was the mental burden of being different, even though everyone is different. Being physically, or seen as different, it kind of just forces you to understand that everyone’s different. I don’t think that it was necessarily a bad thing. Some of the stuff I went through really sucked. But I think it was a necessity for me to become who I am. Because I’m a big believer that a lot of people don’t experience enough pain in their life to make a change, or to do something, so they just kind of coast in this purgatory of a life where it’s not good enough to change. It’s not good enough, it’s not where they want to be, but it’s not bad enough to change so they’re just coasting.



I’m curious, were you powerlifting before you were diagnosed with Type 1, or did you only start after your diagnosis?

Chris: I started after I was diagnosed with Diabetes (at 19). So I was hitting the gym here and there, you know, it wasn’t until Diabetes that I made the full-on commitment to fitness. And I was going to be a lawyer. Until I got diagnosed with Diabetes. So I made an entire life change because of my diagnosis, which is why I stand by that whole message, “Sometimes the obstacle in the path, becomes the path.” What happens to you is the right path. Lots of people think that it’s screwing up their dreams and their goals, but sometimes you have to be realigned with what you need to do in life. And sometimes what you need to do in life is become an advocate for your condition, or an advocate for what happens with you.



When you started powerlifting, was there a learning curve to to making sure that you didn’t go too low or too high? Or were you already kind of used to that because of going to the gym?

Chris: I was already kind of used to it but I didn’t know it played that big of a factor until I had a really bad low, and it screwed up my whole workout and I was like, “Okay, well that can’t happen.” Then I had a bad high and and I was like, “Well that can't happen either,” so I kind of developed these lines of moderation. And it was through experience. It probably would have been smarter if I knew about it before, but definitely, you learn in the process. So now when I teach people, I kind of help them with that.



Can you describe one, or some of your clients that have really left an impact on your life?


Chris:
Absolutely. I have a few that come to mind. The first one was David, the 11 year old with Cerebral Palsy. He couldn’t really walk straight, and in a few months he was running on the beach. Not perfectly, but he was running. He was just so positive and giving up wasn't even an option. For most people it is, but for him it just wasn’t. He was 11 years old and he had a better mindset than people I know double, triple, quadruple his age.

Another lady was an 85 year old woman named Shirley, she relapsed from cancer twice. She could barely get up out of a chair when she came into my office. Within a few months, she was like, standing up and pushing weights over her head, and she wrote a letter to the gym saying “Chris gave me my life back at 85 years old.”

Another was a Type 1 named Taylor. In three months she lost 21 pounds with Type 1 Diabetes, and she went to show people that weight loss is possible. Losing body fat is possible, even with insulin, and all these other issues that happen, and all this. So every client I work with, I get pretty personal with. And I love to see them progress as far as they’re willing to take themselves. I don’t believe that there’s an ideal body. I don’t believe that there’s an ideal physique, or an ideal strength. It’s personal for everyone. I’m just here to help.

Chris and David


We all want to know, what is your favourite low snack?


Chris:
Oh, Frosted Mini Wheats 100%. I absolutely love Frosted Mini Wheats, but it is also the worst low snack, because I can overeat the crap out of them.

We all know that no one can be positive 100% of the time, but you seem to do a pretty good job at it. How do you lift yourself up when you catch yourself starting to feel down?

Chris: So, I’m not a big believer in the whole positivity thing. I’m more of a realist. And in being a realist, you understand that being negative doesn’t help. Even in a crappy situation. You wreck your car, and something happens. It happened. You can’t fix it, and being negative, crying, doing all this other stuff, isn’t going to help. So what can I do to help? Well, I can start thinking of the things that are going to help me and move forward from here. We have the ability to control our reactions to things. That’s the one thing we can always control. We can’t control anything else. We can always control our reactions. Sometimes it’s hard, yes, but we can. And that’s just constantly in the back of my head all the time.


Do you have a favourite motto?

Chris: I have a few. The one I created for my own business is “Limitations are self-imposed.” You create your own crap. And if you want to live in it, that’s your choice. Also, “You teach best what you need to learn most,” is definitely a big push for me. And Michael Jordan spoke, “I hate losing, more than I love winning.”



Which social media platform is your favourite to raise awareness?


Chris: Instagram. Definitely Instagram.

You can find Chris on Instagram @chrisruden, on Facebook here, or at his website, www.chrisruden.com.




Monday, July 10, 2017

My Friends for Life 2017 Experience - Year 2

Last summer I had one of the best summers I've ever had. One of the reasons was because I attended Children With Diabetes' Friends For Life conference for my first time. This is a conference for people with Type 1 Diabetes, and it is HUGE. Over 2000 people attend, all people with Type 1 Diabetes, and the rest who love someone with Type 1 Diabetes.

This year (and they've now announced for the years to come), it was at a Disney hotel, which gave it that extra little bit of excitement, because who doesn't love Disney? In my humble opinion it makes it a lot harder to be sad on Disney property.

We flew out on Tuesday, which was registration day. You go in, you get your FFL tee, and you get a green or orange bracelet. Green for Type 1. And Orange for Type 3 (someone who loves someone with T1D). They also provide an extra yellow bracelet to those who have Celiac Disease, which is very common in Type 1! This allows them to go into the special gluten free buffet at meal times.

Morgan, Gretchen, and I with our green bracelets. Morgan has an extra yellow one!





















 My parents and I got organized, checked out the hotel grounds for a bit, and then I met up with one of my best T1D friends, Mary. She is with Beyond Type 1 who had a session, and a booth in the exhibit hall, so let's just say she was pretty busy, and I feel so lucky that we got to sit in a restaurant for two hours and just chat and have some time to ourselves before things got crazy.

The next morning, I met up with my FFL from last year, Morgan, who I love dearly and it was so good to be reunited. Next came Gretchen. Gretchen and I have been pen pals for over a year, and when we found out she was coming to the conference this year, it was Beyond exciting. So you can imagine our giant hug when we saw each other. It was so surreal and getting to spend the week with her was so special. Now we were just missing our FFL from last year, Ashlyn, who got stuck coming a day late because of school, but arrived the next day and got bombarded with hugs.
Gretchen, Morgan, and I waiting for Ashlyn with our Diet Cokes.
















 That day is what I called Day 1. It was the first day full of sessions, meals, events, and the exhibit hall. The first session I attended was 'Meet Chris Ruden'.  Chris Ruden is a power lifter with Type 1 who is also a motivational speaker. He was born with a congenital defect; he has 2 fingers on one hand and a shorter left arm.   I had previously followed Chris on Instagram and didn't know much about him except for the fact that he was good at lifting weights. He has a large social media presence so I figured I'd choose his session to go to, to see what he's all about. And I was amazed. There is a reason that guy is a motivational speaker. And that's because his words make you want to get up and do something. Right then and there. As someone who also has multiple disabilities, it was definitely a very inspiring session for me. Hearing his story about him accomplishing what everyone told him he could ever do was so powerful.

The awesome Chris Ruden and I...He has slightly more muscle.
















Next was the session I was most excited for; Beyond Type 1 and Bike Beyond! Team Bike Beyond is a group of cyclists with Beyond Type 1 who are currently biking accross the USA to raise funds and awareness for T1D.. and they are unbelievable. So in this session, we got to do a Skype-like session with them. Mary, Dana, and Michelle from Beyond Type 1 stood onstage and did a great job asking questions to the bikers. It was exciting to see some familiar faces who are on the Global Ambassador Council with me. If you go to Beyond Type 1's Facebook page, this was actually live streamed so you can watch it for yourself! These people blow my mind every day, and I am so grateful for their strength and willingness to give it their all to raise awareness.

Some pictures from the Beyond Type 1 Session, with Mary onstage.






Next was the Grand Opening Ceremony. If you read my post from last year, you'll know that every item of food is CARB COUNTED Yes, the carb counts for everything are out on the table. It really is Type 1 Diabetes heaven.

It was also the opening of the exhibit hall, which is always my one of my favorite parts. All the sponsors, and many other t1d organizations and shops set up stations, and have fun, interactive things to do. Especially for the kids. Tic Tac Toe basketball, slime making stations, bean bag tossing, etc. As usual, there were also great giveaways and handouts from various companies. Bags, MANY fidget spinners this year, tees, stress balls, stickers, etc.. let's just say you need an extra suitcase for all of the gifts they give you.

Some pictures from the Exhibit Hall.






Some of my favorite booths included Myabetic, because I happen to be in love with their bags. Beyond Type 1 had a gorgeous booth and had people writing letters to the Bike Beyond Team while they're on the road! I wish they had a more prominent spot in the hall because what they do is really so unique and incredible. Connected in Motion, who takes people with T1D on fun excursions and camping trips also had a great booth. I was also so excited that Genteel was there with their own booth! They had a fun game going on. If you could guess your blood sugar when they tested it, your name would get put in a draw to win a Genteel. One of my highlights was spending quite a while chatting with the doctor who invented the Genteel. A brilliant, and kind man. I found I learned a lot in that conversation. Of course Pump Peelz was there doing some great giveaways and selling Peelz at discounted prices, and you know we can all never get enough Pump Peelz. All the big companies like Animas, Tandem, Lilly Diabetes, NovoNordisk, Dexcom, and Omnipod were also there. I'm sure I'm missing mentioning a lot!

After that, we were fortunate enough to get to see Crystal Bowersox perform live, and she really has the most gorgeous voice.

Day 2 started with a session by Dr. Desmond Schatz. His presentation was heavily dedicated to the urgency of changing the way the world cares for Diabetes. He had great slides and held my interest (which is not an easy feat!).

Some slides from that morning.










The next session I went to was 'How to Get Support Using Apps, the Internet, and Social Media'. I loved the panel for this session, as it was run by two of my favorite this people in the DOC (Diabetes Online Community), Kerri Sparling, and Scott Johnson. I look up to them as mentors, as well as friends, and I'm so fortunate for that. It was a fun discussion and I always love discussing social media for good use.
With Scott and Kerri.

















Every year there is a Family and Friends Banquet with a different theme. This year was Country Jamboree, so it was a fun and easy one to dress for. We saw lots of plaid, overalls, and cowboy hats. During this dinner, one of my favorite singers, Raelynn, performed. I met her last year and met her the day before in the exhibition hall, and she is so kind. But what was even more exciting was sitting on the edge of the stage watching her perform her new hit album so close up. I even managed to grab a set list... I'm a 12 year old fangirl deep inside about many things.

Country Jamboree night, with Raelynn performing.








On Day 3, I went to a session called 'Supporting a Healthy Body Image', which I really enjoyed. I stopped and spoke to some parents of T1D teens after the session, and it was nice to be able to give my insight to them because I was that 14 year old T1D kid at one point.

Day 4. Last day. As most people are all packed up, we headed to the Farewell Breakfast, that was slightly more exciting this year because there were Disney characters. But like last year, this was the hardest part... saying goodbye to these people who you've barely spent any time with yet feel like family. Knowing you'll all be spreading out to your own little part of the world, far away from one another, until next year. And leaving that safe bubble that is Friends for Life. Where there are test strips everywhere, where no one has to ask what that weird device you're wearing on your arm is, and where everyone comes together and goes into this amazing little bubble for a few days. Because these are your people. They are the ones who know what it's like to have to be constantly monitoring your blood sugar, and giving the proper dose of medication with no one's help but your own. They are the parents of T1D children, who essentially have to work as their pancreas as a second job. They are the kids who have to be bribed to test their blood sugar or to treat their highs and lows... who are just trying to be kids. They are the ones who never get a break... yet somehow, Friends for Life kind of feels like our break. For all of us... kids, adults, and everything in between.

We love Minnie.
















As this year wraps up, I want to remind myself that throughout the year I will have something important to look forward to next year. Something to give me motivation on those days I want to give up. Because a year really does fly by. Until next year, FFL.