Thursday, March 16, 2017

Life Lately

Hi all.

This past week has been full of big decisions and there will be many big decisions to come in the following weeks. With the advice and support of my most trusted doctor (my endocrinologist), we have decided that it's time to travel to the US for medical support.

I have felt many times that our medical system has failed me, but hearing my own doctor telling me that feels like a whole other story.  She believes that maybe I'm dealing with something genetic, possibly some sort of mitochondrial form of diabetes. And so she is helping us decide exactly where to go in the United States.

I've expressed this before; Having so many problems in so many different systems of your body gets extremely frustrating when you don't know what's causing it. My doctor told me that even though there may not be any treatment options for whatever I have, I should know what it is. And that meant the world to me.

So despite this system failing me, and us making the big decision to leave the country for help, we're not alone. I have a very small team, but it's a pretty great team. I will try my best to keep my blog updated on this new chapter.

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